Adult Congenital Heart Disease: Patient Education from University of Colorado Hospital
Living With Adult Congenital Heart Disease
Most adults with congenital heart disease have few or no ongoing physical limitations or symptoms. However, all survivors of heart surgery have an increased risk of developing additional heart problems. Many adults with heart defects require additional surgeries as they age. Those with more complex defects have a high risk of developing additional heart problems. These can include:
- Rhythm problems
- Heart failure
- Heart infection
- Stroke
Most adults with congenital heart disease can lead productive lives. This includes working a steady job, exercising and having children.
While exercise is beneficial, most adults with congenital heart disease have a limited capacity for it. Check with your adult congenital heart disease specialist regarding best exercise options.
Most female patients with congenital heart disease can have successful pregnancies. However, it is important to understand the risks. To assist with this, University of Colorado Hospital offers a High-Risk Obstetrics program as well as a Medical Genetics program.
Getting a Second Opinion about Adult Congenital Heart Disease
The American College of Cardiology recommends that all adults with congenital heart disease be followed by an adult congenital heart specialist.
Adult Congenital Heart Disease Support Groups
Heart Matters
A forum for fellowship, advocacy and information for adults with congenital heart defects. Formally affiliated with the Adult Congenital Heart Association.
Meets on second Sunday of each month
5:30 to 7:30 p.m.
Wellshire Presbyterian Church.
For more information please contact drjhbelljr@comcast.net or (303) 917-5383.
Additional Adult Congenital Heart Disease Resources
Adult Congenital Heart Association
Seeks to improve the quality of life and extend the lives of adults with congenital heart defects.
Congenital Heart Information Network
A national organization that provides reliable information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.
International Society for Adult Congenital Cardiac Disease (ISACCD)
Promotes, maintains and pursues excellence in the care of adults with congenital cardiac disease.